Posts Tagged ‘DNA match’

The See-Saw Remains on Up

April 26, 2017

DNA 3Everyone dreams about it. Very few ever have the opportunity. I was one of those very few. True, I didn’t jump into the ocean and save a child from drowning or dash into a burning building to save a baby but I did save a life. A forty-year-old cancer patient had only one chance to survive—a bone marrow transplant. A genetic match is vital for success and I was that genetic match. An Ezer Mizion staff member asked me if I would do it. Would I do it???! How could I not do it?! How could I live the rest of my life knowing that because of a little discomfort, a little inconvenience, a young woman was prevented from living the rest of hers?

Thus said N.D. a law student residing in Israel.

Plans were made. Appointments were set. I was given a run-down of what to expect and all was set to go until I received the phone call. Ezer Mizion thanked me for agreeing to donate but was cancelling the procedure. The woman’s condition had taken a turn for the worse and she was not in any condition to receive the transplant.

I was crushed. By this time, I was identifying with this anonymous person as if she were a close member of my family. And she would be. It would be my blood that would be coursing through her veins. And now it was not to be. I pictured her lying on her death bed with her family gathered around her. I wanted to be there with them. I wanted to hug her and tell her I’m so sorry. Instead I just stood there, still holding the phone. Numb. I read the obituaries for weeks after that, wondering at each entry, “Was that her?”

I was very involved in my university courses at the law school. It was in the middle of major exams when Ezer Mizion appeared once again on my display screen. “Your patient’s condition has improved. She can handle a transplant now but it must be done immediately. Are you available to begin the prep?”

The test I had studied all night for. The notes I had just copied for next week’s test. Grades. Reports… All meaningless now. All I wanted to know is what time I should be there.

My mother was even more excited than I was. She had had cancer at a similar age and is healthy now. She felt that by her daughter donating marrow, she would have a chance to ‘give back’.

At Schneider’s Hospital, I was told I would need 4-5 days of injections to increase the stem cells in my body. On the big day, my blood would be drawn, the stem cells separated from it, then returned to my body. This would continue all day until enough stem cells had accumulated. Then the little ‘bag of life’ would be infused into my ‘blood-sister’. We would be in the same hospital but we would not meet due to international law. Oh, how I longed to hold her hand during the procedure! But I would have to be patient. If all goes well, we’d be allowed to meet in two years.

I can’t deny that the injection period was uncomfortable but every ache was erased   when I watched them bring that little bag to its destination.

I was told that we were a 100% DNA match. Very unusual, they said. Now I lie in bed wondering who my DNA twin is. An unknown cousin perhaps? In one year, I am allowed to ask about her condition. Just knowing that she is healthy will be enough for me. And, if she is willing, in two years, I may meet the person who is alive because I didn’t say no.

A Bone Marrow Registry Nightmare: He Said No!

March 29, 2017

Two Men DebatingAvigayil has successfully trained many in public speaking as head of TED, a worldwide organization whose website attracts viewers that number into the millions. She is passionate about her profession and believes anyone can speak publicly if he is excited about his topic. One would assume that if Avigayil were to take the podium herself, Public Speaking would be her focus. But she says otherwise. “There is something I am even more enthusiastic about. In fact, if it were not for that subject, I would not be here today. What is it? It’s leukemia.

Uninvited, leukemia visited me twice. The second time, the doctors didn’t hold out much hope. In fact, the only possibility of survival depended on a bone marrow transplant. And the chances of finding a genetic match, so vital for success, weren’t that great. I became quite depressed. Who wouldn’t be under such conditions? But then the sun shone again. A match was found. I began to make plans again. Things were looking up.

It never occurred to me that there would be a hitch at this stage. But there was. This DNA match, the only one in the world that we knew about at the time, the only person who could save my life…changed his mind. Thud! My spirits plummeted from Euphoria to Gloom.

My one and only chance to live had said no. I couldn’t fathom it. But Ezer Mizion didn’t waste any time being upset. They just said, “Ok. Back to the computers. We’ll find you another one.” I didn’t have much hope. Two miracles? Isn’t that too much to hope for? At Ezer Mizion, miracles seem to happen often. They did find a second one.   But he was on vacation in Tiberias with his wife. Of course, everyone expected him to say no. After all, a lot of effort and money goes into planning a vacation.

“Where should I report? What time?” was the response.

I’m healthy now. I have a long life to look forward to. A year after the transplant, I met my savior. We spoke for hours but the most important thing I was not able to say. How does one say thank you for saving a life?

If I were to take the podium, this is what I would speak about: Ezer Mizion, the largest Jewish registry in the world with over 800,000 registrants, an organization that just doesn’t give up!

 

For further info: www.ezermizion.org              5225 New Utrecht Ave Bk NY 11219             718 853 8400